As many of us are aware, electroshock
(“ECT”) has never been officially banned or phased out
anywhere in the world. I wish it were, and so do many other shock
survivors, antipsychiatry activists, and human rights activists.
I pay tribute to several shock survivors in Canada, the United States
and Ireland who have courageously and publicly testified against
shock and demanded its abolition: Sue Clark-Wittenberg, Wendy Funk,
Carla McKague, Paivi Marshall, Linda Andre, Barbara Cody, Janet
Gotkin, Wayne Lax, Mel Starkman, Leonard Frank, George Ebert, Ray
Sandford, Mary Maddock - to name a few. Electroshock is not a medical
treatment – it is an extremely serious violation of our human
rights—and always causes harm, always causes brain damage
(Frank, 1990;
Breggin, 1998; Weitz, 2008).
Although a few hospitals rarely administer electroshock or have
stopped it, many continue to administer and promote. So far, no
country has officially outlawed electroshock. I have heard that
Slovenia banned electroshock, but this claim is unofficial and not
supported by any official document published by the Slovenian government.
As a memory-destroying, brain-damaging “treatment”,
electroshock is arguably the most violent, traumatic, and brain-damaging
procedure in psychiatry today. Women and the elderly, particularly
women 60 years and older and mothers diagnosed with postpartum depression
are ECT’s main targets. (Burstow, 2006a, 2006b; Weitz, 1997).
Sexist and ageist factors obviously influence its use. ECT statistics
I’ve obtained for Ontario and British Columbia show that two
to three times more women than men are electroshocked; elderly women
are at greatest risk (Ontario Ministry of Health, 2007; B.C. Ministry
of Health, 2008). Since electroshock was first used as a psychiatric
treatment in Canada and the United States in the early 1940s, there
has been conclusive scientific evidence that it always causes epileptic
seizure, (inaccurately labeled “therapeutic”), convulsion,
coma, and brain damage including blood vessel hemorrhage, destruction
of nerve cells, permanent memory loss, other “cognitive dysfunction”
including impairments in concentration, learning and creativity,
and sometimes death (Breggin 1998; Frank,1978, 2006). Despite this
evidence, shock promoters including the Canadian Psychiatric Association
and American Psychiatric Association irresponsibly minimize permanent
memory loss as a “side effect” or “transient”.
In a recent position paper, the Canadian Psychiatric Association
greatly minimized permanent memory loss claming “a small minority
of patients…[have] subjective complaints” and flatly
denied brain damage-- “[ECT] causes no detectable evidence
of irreversible structural brain damage” (Enns & Reiss,
2001)
However, in the United States
and Ireland, several physicians have publicly called for a ban on
electroshock and severely criticized its continued use (Friedberg,
1977; Breggin, 1997; Breeding, 2001; Sterling, 2002; Corry 2008).
In sharp contrast, Canadian psychiatrists continue to fraudulently
promote ‘ECT’ as a “safe and effective”
or “lifesaving” treatment for depression. Further, Canadian
neurologists have remained conspicuously silent; in the early 1990s,
I wrote a letter to the Canadian Neurological Society asking them
to criticize or speak out against electroshock. I never received
a reply.
Before discussing strategies
that work and don’t work, I think it’s important to
recognize the many acts of resistance against electroshock. Since
1982, this grassroots resistance has been organized and carried
out by many courageous shock survivors, antipsychiatry activists,
advocacy and human rights groups in the United States, Canada, and
since 2007 in Ireland. What follows are a few highlights of this
significant and continuing resistance:
Acts of Resistance
• 1982, November 2:
In Berkeley, California in protest over the massive electroshocking
of patients in Herrick Hospital and other psychiatric facilities,
the Coalition to Stop
Electroshock succeeds in putting a shock ban referendum (‘Measure
T’) on the city
ballot — 61% vote to ban electroshock in Berkeley, after the
Coalition collects 2,452
names on a petition. This historic democratic vote is later ruled
invalid by the State
Supreme Court.
• 1983, May 23-24: During
the 11th Annual International Conference for Human
Rights and Against Psychiatric Oppression in Syracuse, New York,
nine psychiatric
survivors block the front doors of Benjamin Rush Psychiatric Center
as an act of
nonviolent civil disobedience. Three years later, Benjamin Rush
stops electroshocking
patients.
• 1983, October 21:
the first Public Forum on Electroshock and Other Crimes of
Psychiatry in Canada is organized by the Ontario Coalition to Stop
Electroshock. Many shock survivors and supporters give personal
and political
testimony against shock in Toronto City Hall.
• 1983, October 22:
North American Day of Protest Against Electroshock Demonstrations,
vigils, rallies and educational events are carried out by survivor,
anti-psychiatry and human rights groups in Denver, San Francisco,
Boston, Syracuse,and Toronto. In Toronto, approximately 50 psychiatric
survivors and supporters march and protest in front of the Clarke
Institute of Psychiatry, Ontario’s “shock shop”.
• 1984, January 17:
At a public meeting of the Toronto Board of Health, seven members
of the Ontario Coalition To Stop Electroshock convince the Board
to call a moratorium on electroshock in Ontario. The Board’s
decision marks the first time in Canada that a board of health or
any health body tries to restrict electroshock, but Ontario’s
Ministry of Health refuses to enforce the moratorium resolution.
• 1984, July 3-6: Three
Coalition members organize nonviolent civil disobedience;
they stage a sit-in in Keith Norton’s office requesting to
meet with him. The protesters
refuse to leave until Norton meets with them; he refuses, and security
guards force the peaceful protesters out of the building. They all
return on two consecutive days, guards force them out again. On
June 6, the Coalition issues a press release criticizing Norton
and demanding he appoint a shock survivor to the ECT panel. Two
months later, Norton appoints lawyer-shock survivor Carla McKague
to the 16-member ECT Committee. Carla is the only member advocating
abolition. A partial victory.
• 1984, October 7, 14,
21: Since neither the Toronto City Council nor Ontario government
has held public hearings on electroshock, the Coalition organizes
three days of public hearings in Toronto City Hall. Approximately
50 people, predominantly survivors and a few relatives, give moving
testimony about the devastating effects of permanent memory loss
and brain damage on their lives. All but one person urge a total
ban (Froede & Baldwin, 1999).
• 1991, February 11:
The San Francisco Board of Supervisors passes a resolution to stop
public funding of electroshock in San Francisco following public
hearings. (later overturned by a court)
• 2005, April 9-10:
The Coalition Against Psychiatric Assault (CAPA) holds public hearings
on electroshock in the Toronto City Hall Council Chambers. Only
shock survivors are invited to speak. An independent panel facilitates
the testimony and writes a report, Electroshock Is Not A Healing
Option, based on the survivors’ testimonies. The full report
is posted on the CAPA site (Report, 2005).
• 2006, April 24: The
Coalition for the Abolition of Electroshock in Texas (CAEST)
organizes a public rally and march to protest electroshock and demands
Seton Shoal Creek Hospital in Austin, Texas stop shocking patients.
An excerpt from its Mission Statement reads, “Our mission
is to abolish electroshock in Texas, and we won’t rest until
we do” (Frank, 2006).
• 2007, May 13: On Mother’s
Day, three anti-shock demonstrations are simultaneously held in
Toronto, Montreal and Cork, Ireland with the theme “Stop Shocking
Our Mothers and Grandmothers”. These protests highlight the
fact that women, particularly elderly women, are the chief targets
of electroshock. They indicate that the movement to abolish electroshock
is becoming international. (See reports on http://capa.oise.utoronto.ca,
and capacanada.wordpress.com)
• 2008, May: Three anti-shock
protests are held in 3 different cities on or close to
Mother’s Day with the same theme “Stop Shocking Our
Mothers and Grandmothers”: on May 3rd in Cork, Ireland organized
by MindFreedom Ireland; on May 10th in Montreal, organized by the
Comite Pare-chocks in collaboration with Action Autonomie and Collectif
Pour la Defense des Droits en Sante Mentale de Montreal; and on
May 13th in Ottawa, organized by the International Campaign to Ban
Electroshock.
• 2009, May: Three anti-shock
protests are held. On May 10th in Toronto, a march andrally organized
by the Coalition Against Psychiatric Assault (CAPA) in Queen’s
Park attracted over 100 people, and New Democratic Party Member
of the Ontario Parliament Cheri DiNovo announced she will introduce
a bill to ban electroshock; similar protests are held in Montreal
on May 9th, and Cork, Ireland on May 31st.
Strategies That Don’t
Work
Letters & Petitions
Despite good intentions, letters to the editor and letter-writing
or petition campaigns organized by psychiatric survivors and rights
activists are generally ineffective. Editors, who are generally
elitist and psychiatrically biased, frequently publish letters from
shock promoter-psychiatrists and other mental health professionals
and a few shock survivor celebrities who parrot psychiatry’s
“safe and effective’ myth. At the same time, they routinely
reject critical letters from ‘ungrateful’ shock survivors
and other critics. In the mainstream media, letters from survivors,
activists and advocates carry no political clout; no matter how
articulate and truthful, survivor letters don’t persuade government
health officials, ministers or politicians to question or criticize
electroshock. ‘ECT’ letters published in the mainstream
press or read on radio and TV are typically written by “mental
health experts” (e.g., University of Toronto historian Edward
Shorter) who parrot shock myths and lies: electroshock is “safe
and effective”, not brain-damaging, “lifesaving,”
despite the continuing lack of medical and scientific evidence.
A notable exception was the
successful 2008-2009 letter-writing campaign organized by MindFreedom
International (MFI) on behalf of shock survivor Ray Sandford. Despite
his repeated refusals, Sandford was electroshocked as an outpatient,
judged incompetent and put under the guardianship of social workers
with the Lutheran Church in Minnesota. Soon after he asked Mindfreedom
International to intervene, an intense six month letter- writing
campaign was launched with letters targeting the Church, Sandford’s
psychiatrist, other hospital doctors, and Minnesota Governor Tim
Pawlenty. After hundreds of letters mailed and over 40 forcibly
administered ECTs, Ray Sandford was no longer electroshocked in
April 2009 and after that time. MFI’s letter-writing campaign
focused state, national and even some international attention on
electroshock; it succeeded in pressuring Sanford’s psychiatrist
and other hospital doctors to stop shocking him against his will.
Although a big victory for Sandford and MFI, the success of this
letter-writing was obviously limited, because it did not stop or
significantly reduce the use of electroshock in Minnesota (Oaks,
2009)/
Petitions
Or consider petitions. Around 1985 or the mid-1980s in Toronto,
the Ontario Coalition to Stop Electroshock collected over 1000 signatures
on a petition that demanded a moratorium or ban on electroshock
in Ontario and submitted it to the Ontario Legislature. It was essentially
ignored, never debated, and there was no media coverage. In the
United States, the Committee for Truth in Psychiatry (CTIP) organized
a letter campaign against the Food and Drug Administration’s
threat to reclassify shock machines from class-III (hi-risk/unsafe)
to class II (low-risk/safe). Despite intense pro-shock lobbying
by the American Psychiatric Association, the FDA has not yet reclassified
these machines currently capable of delivering over 400 volts of
electricity. A partial victory for CTIP and other shock survivors
and allies who wrote letters urging the FDA to keep the machines
classified in Class-III. Nevertheless, this threat and electroshock
continue. (Andre, 2009; MindFreedom, 2009). In Canada, Health Canada
has also never tested shock machines for their medical safety and
effectiveness (Lyons, 2002).
Public Hearings
Unfortunately, public hearings have had essentially minimal impact
on politicians and the public including the media. In the United
States, the state governments in California, New York and Texas
have held public hearings. These hearings have had three major effects:
1. outlawing ‘ECT’ to children under the ages of 14
(Texas) and 12 (California), 2. providing more detailed information
regarding the shock procedure and its major effects, and 3. spelling
out informed consent including the person’s right to refuse
‘ECT’. However, despite public hearings in San Francisco
where the city’s Board of Supervisors passed a resolution
to stop public funding of shock in that city, electroshock resumed
in local hospitals (Figueroa,1991; Frank, 1991). Also, despite public
hearings held by the New York State Assembly in 2002, forced electroshock
is still legal in New York. Unfortunately, there has been no significant
reduction in electroshock in these and other states.
In Canada, so far no provincial government has called or endorsed
public hearings. In October 1984 the Ontario Coalition to Stop Electroshock
held three days of public hearings in Toronto City Hall. Approximately
50 people, mostly shock survivors and relatives, gave gripping and
moving testimony; all but one urged a total ban on electroshock.
(Froede & Baldwin, 1999). One year later, in December 1985,
the Ontario government’s ‘ECT’ Review Committee
issued a report with many recommendations, spelled out informed
consent to ‘ECT’, but minimized the common and disastrous
effects of brain damage and permanent memory loss; it also refused
to recommend a moratorium or ban. In 2005, the Coalition Against
Psychiatric Assault (CAPA) held two days of public hearings in Toronto
City Hall. This pubic event was very empowering and supportive for
the shock survivors who courageously testified, but no reporters
showed up, and there was no media coverage. In Toronto, the media
have consistently refused to cover anti-shock or antipsychiatry
events (Report, 2005).
Strategies That Could
or Should Work
Class Action
For some mental health lawyers and rights advocates, the fact that
there are still no class action lawsuits in Canada that limit or
ban electroshock is frustrating - there definitely should be. Class
actions, perhaps modeled on successful class action lawsuits against
multinational drug companies, could have powerful and rippling effects.
The argument that shock machines as ‘medical devices’
have never been independently tested or government-inspected for
medical safety should be relevant and helpful evidence. (Lyons,
2002; Andre, 2009; MindFreedom, 2009). However, numerous scientific
studies and critical reviews that conclusively prove brain damage
together with expert testimony from several psychiatric critics
and neurologists, as well as personal testimony from many shock
survivors who have been seriously disabled and traumatized by ‘ECT’
provide more powerful evidence. (Breggin, 1998, 2008; Calloway,
1985; Sackeim, 2007; Report, 2005). Unfortunately, there are two
major problems in launching class action cases against electroshock:
1.Many shock survivors are understandably afraid or ashamed to testify,
to ‘go public’, and so they refuse to testify in court,
and 2. The legal costs are prohibitively high, and legal aid is
insufficient or nonexistent for civil cases.
Possible solutions could include
the following: providing community support or advocacy groups for
shock survivors who intend to sue shock doctors and/or ‘shock
mills’; urging hi-profile shock survivors – nationally
respected actors, writers, scientists or politicians – to
initiate or join the class action; and finding lawyers or law firms
willing to represent shock survivors on a ‘pro-bono’
or contingency basis - very difficult to find.
Political Strategies-
Legislative Bills
We need more political action at the provincial and state legislative
levels. We need to educate and lobby politicians about electroshock,
convince them to speak out publicly denouncing electroshock as unsafe
and inhumane, and introduce seriously restrictive or abolitionist
legislation. Although California and Texas passed regulatory legislation
that outlaws ECT for children under 12 and 14 years old and spells
out written informed consent, electroshock was not significantly
reduced or abolished in these states; in fact it increased (Andre,
2009). Besides, “informed consent” to electroshock as
well as psychiatric drugs is and always was a sham – this
legal right and ethical principle is constantly violated. Cheri
DiNovo, a New Democratic Party Member of the Ontario Provincial
Parliament, has publicly denounced electroshock as “inhumane”
during Mother’s Day protests in 2008 and 2010 in Toronto.
On May 11, 2010, she also held a press conference at which three
members of the Coalition Against Psychiatric Assault spoke out in
support of her bill. Titled “Ending Public Funding of Electroconvulsive
Therapy Act”, Ms DiNovo’s bill seeks to stop funding
electroshock in all public hospitals under the Ontario Hospital
Insurance Plan (OHIP). Although the bill does not affect electroshock
in private hospitals where ‘ECT’ would still be legal,
this is a very important step in our struggle to limit and eventually
ban electroshock in Ontario. Ms. DiNovo is the first politician
in Canada to publicly denounce electroshock and take legislative
action. Unfortunately, her bill will not be heard or debated until
2011; because it is a ‘private member’s bill’,
her bill has a very slim chance of being passed. Nevertheless, Ms.
DiNovo’s political initiative is strongly supported by CAPA
and several other social justice groups. Her defunding bill could
have a ‘ripple effect’ in persuading other politicians
to speak out against electroshock and urge many advocacy and human
rights organizations in Ontario and other provinces to initiate
lobbying campaigns and other political action (DiNovo, 2010).
International Coordinating
Body
Probably a more useful and
comprehensive strategy involves establishing a transnational committee
or organizing group – perhaps titled The International Coordinating
Committee to Ban (or Abolish) Electroshock. Currently, there is
no such organization that could coordinate and facilitate a wide
variety of anti-shock events including protests, networking and
political lobbying in several countries. For many years, there have
been pockets of anti-shock protests and rallies in various cities
but the turnouts have been typically low (50-100) and marked by
little or no media coverage and minimal coordination. This must
change soon if the anti-shock movement is to achieve public credibility
and political clout. This is starting to happen. For example since
2007 there have been annual protests with the theme “Stop
Shocking Our Mothers and Grandmothers” held on or close to
Mother’s Day in Toronto, Ottawa, Montreal and Cork, Ireland
– thanks to the initiative and continuing support of CAPA
in Toronto, together with MindFreedom Ireland in Cork, Ireland,
Action Autonomie in Montreal, and the International Committee to
Ban Electroshock in Ottawa. Resistance against electroshock is about
to go global. These protests can and should spread transnationally
and be held on a specific day in many other major cities such as
Vancouver, New York, San Francisco, London, Paris, Berlin, and Rome
– to name a few. December 10th, International Human Rights
Day, seems an appropriate date for an international anti-shock protest,
since electroshock is fundamentally a human rights issue and violation;
it also marks the date when the Universal Declaration of Human Rights
was adopted by the United Nations General Assembly in 1948.
More specifically, The International
Coordinating Committee could develop and carry out some or all of
the following tasks: initiate public educational campaigns focused
on permanent memory loss, brain damage and other major effects and
risks of ECT; provide literature and technical support for anti-shock
demonstrations and protests including nonviolent civil disobedience;
consult with survivors and advocates in class-action cases; launch
networking campaigns involving psychiatric survivor, disability
rights, feminist, social justice, and human rights organizations;
strike a media subcommittee to handle requests for information from
the media and provide spokespeople for interviews; develop fundraising
strategies. The Committee should consist of a maximum of 15 members
with a majority of shock survivor-activists (70%-80%) and some dissident
health professionals and academics (20%-30%) who have publicly called
for or advocated a ban. Members should come from European, North
American, South American and African countries, as well as New Zealand
and Australia. The process must be democratic and transparent. All
members should be elected as representatives of their organizations,
all meetings should be open to the public, but only members should
be permitted to vote. The Committee should also create and maintain
a website with several links including event updates, a schedule
of rallies-demonstrations-protests, legislative initiatives, brief
summaries or abstracts of relevant legal cases, a list of organizational
members. and contact email addresses.
Of course, no single strategy
will abolish electroshock. However, I am convinced that a combination
of well-coordinated strategies in several countries - such as successful
class actions, nonviolent civil disobedience, political lobbying,
and restrictive or abolitionist laws – can speed the day when
electroshock will be universally banned, because it always causes
harm, degrades, traumatizes, and violates our human rights.
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