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Introduction
This paper, presented at the
PsychOut conference in Toronto in May 2010, outlines lessons learned
from a study conducted within an adolescent psychiatric inpatient
unit. The oppressive nature of child psychiatry is discussed, along
with an analysis of children’s agency within mental health
services. The combination of children’s agency and children’s
rights is considered in relation to individual and collective resistance
to the exercise of practitioner and institutional power.
Setting
This paper is based on an
ethnographic research study that was conducted within Child and
Adolescent Mental Health Services (CAMHS) in the UK. I lived in
an adolescent inpatient unit for four months. During this time there
were 12 children included in the study, aged between 11 to 18 years.
The children were labeled with a range of diagnoses from depression,
obsessive compulsive disorder, eating disorders and queried psychosis,
to name a few. This was a 4th tier service (HAS, 1995), which implies
that all other services on an outpatient basis were inadequate to
support these children from a professional point of view. However,
this was not a locked ward, and the inpatient unit was staffed by
a psychiatrist, nurses and support workers. The day-patient unit,
where the children received their education and some of their treatment,
was staffed by psychiatrists, social workers, psychologists, counselors
and teachers. All of the children in the study were prescribed psychotropic
medications, including one child who was given a neuroleptic drug
against his wishes, despite not having been given a diagnosis of
a psychotic disorder.
Coercion
Coercive means were used in
a variety of forms, both subtle and overt, in order to ensure compliance
with rules and treatment plans. One such form included the enforcement
of treatment by threatening to or taking away privileges. That is,
denying weekend leave or forcing weekend leave – depending
on which was most unappealing to the individual children –
was regularly threatened and executed as a punishment for noncompliance
with treatment or for breaking rules. Another form of coercion included
the ‘blame and shame’ technique. This technique involved
attempts to instill guilt and blame the children for their mental
health problems. In particular, the children were told that if they
wanted to get better they would comply with treatment. By not complying,
they were accused of not wanting to get better. Within the inpatient
unit, the discourse of ‘getting better’ became equated
with compliance. Any alternative notions the children may have held
regarding other forms of treatment – such as peer support
- were silenced, considered harmful and/or out-rightly banned. As
such, the use of coercion was legitimized through the production
of a discourse on compliance.
Another form of coercion for
noncompliance included increasing observations levels of individual
children, which resulted in intense emotional distress for some
children, particularly when put on level 4 observation (LeFrancois,
2007a). Threatening and/or executing suspension or discharge from
the hospital were also used as a means to coerce children to comply
with treatment and hospital rules. At times, children were even
put at significant risk by being sent home, which showed a complete
disregard for the ‘best interest of the child’. Overtly
illegal means of coercion were also applied by threatening to formally
detain the children under the mental health legislation for refusing
such things as neuroleptic medication or meal portions. These forms
of coercion, as well as several others documented in the study and
detailed elsewhere (LeFrancois, 2007a), point to an enormous abuse
of power on the part of the practitioners and the institution that
condoned these methods.
Power Relations
I analyzed the relations of
power in the inpatient unit, which were very complex and are examined
in detail elsewhere (LeFrancois, 2007a). One of the very interesting
aspects of the relations of power in this setting that I want to
discuss here is the realization that the children are not merely
passive vulnerable victims within this dynamic. They too were actively
involved in exercising power over the practitioners and each other
in both positive and negative ways. Some examples of their doing
so included: refusing to cooperate with practitioners; engaging
in reasoned arguments with the practitioners in an attempt to get
them to change their minds; absconding from the inpatient unit;
recruiting allies from the staff team and obtaining the collusion
of practitioners; and many successful covert forms of pleasure seeking
that were contrary to hospital rules. They did not have equal access
to the exercise of power, and they were rarely the beneficiaries
with the relations of power (Keating, 1997), however their active
engagement points to their own agency (James and Prout, 1997; Shotter,
1974; Ingelby, 1974). Their active engagement points to their own
abilities to resist the exercise of power exerted by the practitioners
and by the institution as a whole.
Children’s Rights
Although the experiences of
oppression in the inpatient unit in some ways relate directly to
the experience of discrimination and oppression in the greater society
due to belonging to the minority groups of ‘children’
and ‘psychiatric patients’, the experiences are not
additive in relation to these aspects of their identities. Instead,
an intersectionality approach highlights the often complex role
that not only social inequalities but that multiple subjectivities
may play within the dynamics of power relations. For example, issues
of oppression and privilege that interweave within hierarchies of
race, gender, sexuality, class (Cole, 2009; Daley et al, 2007; McBride,
2007) mental health status and age (LeFrancois, submitted) are important
categories of analysis in this regard. In particular, the denigration
of children through normative conceptualisations of sanism and adultism
are problematic within society as well as within inpatient child
psychiatry (LeFrancois, submitted; 2007a). However, the category
‘child’ may actually position the young people in a
place of resistance, given the national and international legislative
backing of children’s participation rights in mental health
services.
The UN Convention on the Rights
of the Child (CRC), international legislation ratified by every
country in the world other than Somalia and the USA, provides children
with rights in relation to their protection, the provision of services
and their participation (Archard, 2004; Teeple, 2004; Franklin,
2002; Fortin, 1998). Recognition of children’s participation
rights with regards to mental health services are directly and indirectly
embedded within articles 12, 13, 37 and 42 of the CRC. These articles
provide children with the right: to be consulted on all matters
in their lives; to have their views be given due weight in decision
making; to have access to information and to provide information
regarding their lives; to a safe environment, free from “torture,
cruel, inhumane and degrading treatment or punishment”; to
be placed in detention only as a last resort and to be treated with
“respect for the inherent dignity of the human person”
if they are detained.
Adult service users do not
have similar legislation in terms of having direct rights to user
involvement in their treatment, care and service development. However,
as this study demonstrated (LeFrancois, 2006; 2007a; 2007b; 2008),
the extent to which these rights are accorded in practice for children
are minimal to non-existent. Instead, children’s participation
rights are reinterpreted to suit the professional agenda relating
to the bio-medical model of treatment and the adult agenda of social
control. This reinterpretation leads to widespread rights abuses
within the inpatient unit. These rights abuses took a variety of
forms, some of which included: lack of consent sought for admission
to hospital; limited access to information; curtailing of the voicing
of opinions; lack of informed consent to treatment; coercion to
comply with treatment by threatening detainment under the mental
health legislation; coercion to comply with medication by a punishment
system; and forced participation, amongst others.
Collective Resistance
Although it appears as though
children’s rights are not always being accorded within mental
health services, there is still room to demand – with international
legislative backing - that they be accorded. This research demonstrates
the capacity of children to resist psychiatric oppression at the
individual level. That capacity, coupled with children’s rights
instruments, point to the ability – and necessity - of children
to collectively resist psychiatric oppression. However, for the
most part, children with psychiatric labels have been excluded from
the children’s rights movement as well as from the psychiatric
survivor movement. The children’s rights movement literature
is sparse with regards to mentioning or acknowledging the importance
of children’s rights within mental health services. Also,
there is little evidence of children’s organizations actively
taking up the issue of the rights of children who are labeled with
mental health problems. In addition, there has been, for the most
part, a lack of accessible involvement of children and young people
at conferences put on by the psychiatric survivor movement, and
there is a dearth of writing in this area from children’s
perspectives. These are all unacceptable exclusions.
Discussion
Rather than take up the cause
ourselves as adults, rather than seeing children with psychiatric
labels as weak and vulnerable, we need to acknowledge their agency
and support their full participation in collective action. This
leaves us with the following questions to ponder and to actively
find answers:
? How do we make the psychiatric
survivor movement more accessible to children?
? How do we create space for
young voices to be heard along with adult survivors?
? Rather than take up the
cause on their behalf as adults, how do we build on children’s
own agency to actively participate in collectively contesting child
psychiatry (and its affiliates) whilst working toward dismantling
the system?
Although I make no attempt
to answer these questions fully here, which I believe should involve
a collective effort by adult and child survivors, I offer some insights
from the general children’s rights and children’s participation
literature. Hart’s (2002) reworking of Einstein’s ladder
of participation remains instructive in its elaboration of engaging
in real participation with children, whilst avoiding the common
adult pitfalls of minority tokenism and manipulation of children
for an adult agenda. This work provides a map for engaging in true
collaboration between children and adults and may be the best starting
point for adult survivors who are interested in not only engaging
but learning from children who have been psychiatrized and are struggling
to survive the mental health system. It is crucial for the adult
survivor movement to commence any collaboration ensuring that they
are not doing so merely to benefit the adult survivor agenda but
to enable children’s participation in such as way that they
can realize their own collective agenda within the larger movement.
Like adults working with children within the system, adult survivors
should also consult the practice principles of children’s
participation (Holland and O’Neill,2006; Connolly and McKenzie,
1999; Sketchely and Walker, 2001; CROA, 1998; Michel and Hart, 2002)
in order to facilitate children’s full involvement in a meaningful
and informed manner. If this is not done with care and respect,
the adult survivor movement runs the risk of emulating the actions
of the very oppressors they are trying to overthrow.
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